What a couple of days! I went for my chemotherapy appointment on Thursday which was supposed to be 2 hours long. Well, it was an ordeal. My pain was better, but I was very weak and pale. As I expected, my blood work crashed and my hemoglobin, hematocrit, red blood cell and white blood cells and more dropped to dangerous levels. After meeting with the nurse practitioner and the doctors review, I was told I would have to go to the hospital for blood and rest. I still had my chemotherapy, but also needed other intravenous medications and shots to be able to take it. I now have to take a shot every two weeks to help me produce red blood cells called Aransep. They are also going to give me other IV’s next week to help me absorb iron. I have been asking for blood and found out I had to wait until my Hemoglobin dropped to 8.5 to have medicare pay for it. That was quite a wait as I felt like I was about to drop dead from exhaustion. I finally got my chemotherapy and then was sent to the hospital. That day I got my blood typed and cross matched and got the blood yesterday. I had 2 pints and which took until late last night. I finally got home after 9 PM. It was just exhausting.
I had been constipated from all the vicodin and after the blood started having bowel movements. It seems that the blood helped in many ways. I hope that my body will now start to build red blood cells and iron. I felt a bit better after the blood.
Yesterday I was completely wiped out from pain. I could not get it under control and my daughter and I were really worried. I am a bit better, but still having pain. I have had to take so much vicodin that now I am constipated and bloated. I have chemotherapy tomorrow as long as all my blood work is good. I may need a special shot for iron tomorrow if I am still low and anemic. I am so weak that I expect I will need it. I have been taking slow release ferrous sulfate (slow release iron) but my oncologist is concerned that I am not absorbing iron in my body. That may be why I just can’t get any energy.
My daughter had most of the day off, but since she missed a couple of hours yesterday, she still had to take today as a day off and still go in and make up for yesterday. That was frustrating as she has to drive 45 minutes each way. She tried to get me to go swimming, but I got outside and just could not get the strength to swim, so I just got wet with the hose since it was so hot.
I did not have much of an appetite either. My daughter made me artichoke a boiled potato and chicken, but I could barely eat. I did finally have a small piece of homemade apple pie that she made. My food choices are off, but they want me to eat. My daughter did get me to eat a milkshake with protein and vitamins. I also drank my Odwalla super green and carrot juice. I have been drinking water all day too.
“I will get better, I will get better, I will get better”. I have to.
Hi this is Gia‘s daughter with a quick note. Mom had a rough night last night followed by a terrible day of pain. I stayed home until the Nurse could come to check on her. I am going to take the rest of the week off as she needs to have someone with her all the time this week as she is having severe pain. The doctor has her taking Vicodin. He said that there may be a lot of pain in the first three chemotherapy cycles and it has hit. It is so hard to see her in pain. I wish I did not have to go to work, but I have to work some to at least pay our mortgage. I sure wish she could feel better. I will do Mom’s chant…”Mom will feel better and her cancer will be healed, Mom will feel better and her cancer will be healed, Mom will feel better and her cancer will be healed.”
Mom needs me so wish us well and take care,
Today I have felt weak and very tired. My son had to go home for a while as he does not live here and my daughter had to work. She has cut down to 3 days a week to help care for me. One of our dear friends came over today and sat with me for hour hours and it was nice to visit and rest with her. Tomorrow, I have a nurse visit. It seem that I get exhausted on the 4th day after chemo. It really hits me like a brick and all I want to do is sleep.
Tonight my daughter got me in the pool for a few minutes, but I had some stomach pain and was so tired, I just slept for a couple of hours. I am going to go back to bed. Just wanted to give a quick hello. I am hanging in there and we are all doing the best we can to make it. Keep strong too.
It was another sweltering day today. Thankfully, I actually feel better. My body is not as painful as it was from my first round of chemotherapy which is two different types. My second dose was the “lesser” of the two and so far, not as hard on me. I seem to have more energy today which I am attributing to having good luck with bowel movements. It probably sounds gross, but it really make me feel better and less bloated. I drank 3 glasses of my super green Odwalla which may have been the helper.
I continue with all of my herbal supplements such as Protandim that I got from a website called livelifehealer.com, tumeric, chlor oxygen, coral calcium and all kinds of vitamins and even a multi-vitamin. I have been taking extra strength Tylenol for headaches and body aches. I do not want to take anything much stronger unless absolutely necessary.
My children got a fish we had never heard of called basa. It was on sale today and since we are on such a tight budget, thought we could try it. They put an egg batter with panko, salt, pepper, paprika and fried it. Okay frying is not the best, but it was very good. Kind of a cross between sole and cod. It also did not have bones in it and was light on my stomach. I also had fresh beets and endive. It did pretty good eating.
I also had enough energy to get in our pool (we have a dough boy) and that cooled me off. Then as a special treat, my children treated me to the last Batman movie, The Dark Knight Rises,which was very good. Speaking of the movie, it was so horrific to hear of the tragedy in Colorado with the mass shooting of audience members. My heart goes out to all affected by this very sad tragedy.
No matter how hard or wonderful each day is they are blessings and a gift.