I want to add a note for yesterday…It was so hot that I was worn out all day. Our house gets extremely hot and I must say that it is very hard to take on chemotherapy. It was the day after my second dose of treatment and it just got to me. I also have had problems with my tongue peeling. It feels swollen and it makes it difficult to eat. My oncologist forgot to give me a prescription for thrush which he said may help. The nurse was supposed to call it in and guess what she did not do it. Very frustrating! I am doing baking soda and warm water and that helps a bit.
I also had a visiting nurse come in to check as my children wanted to be sure that I had someone to check on me at times. That was also very stressful as she was here for 3 hours and had so many questions. It was a bit overwhelming. I also have to meet with a physical therapist with my children. We are going to do that after I can use my arms more. I have to wait another 10 days before I can exercise my arms.
We are going to beat this cancer!
I had my second dose of chemotherapy today. Overall, the treatment went fine. I had four and a half hours in the office though, as they were behind two hours. My children and I met with my oncologist today. Overall he thought I was doing good as my hemoglobin did not drop and my hematocrit was a bit better. He said I seemed stronger to him in his assessment. He wants me to take 3 iron tablets a day now instead of the liquid one I was taking as he said the body does not always absorb the liquid properly. I will have to take a laxative daily to counteract the constipation of the iron. It did stress me to hear that on the Pet scan there was 2 lymph nodes in a different area outside the peritoneum. He said my treatment would stay the same and treat it just fine. It is re-classified stage 4 meaning an area outside of the main, but he said it does not change what I am doing and it is still treatable. It’s still scary, but I feel confident that “I am going to get rid of my cancer I am going to get rid of my cancer, I am going to get rid of my cancer”.
He wants me to be sure to exercise, drink as much fluid as possible and get food in as food is fuel. He did order nurse visits weekly and physical therapy to keep my moving. He said it is never too late to exercise and it actually will keep me stronger. I have arthritis too and that is why he wants me to keep moving as much as possible. Its going to be interesting. My doctor said he saw a really uplifting movie called a A Good Year or close to that and suggested it to me. I will have to see if I can rent it. He also said to watch as many funny movies or show and laugh as much as possible. I agree, I just need to remember to be happy now matter what. So I will leave with that… laugh and be happy no matter what.
It was another long day trying to bounce back from my chemotherapy treatment. I finally started to feel better late tonight. I was able to eat dinner and some snacks today. I still love an afternoon milkshake. Now, my son made one today that was filled with nutrients such as a protein shake, vitamin C packs, flax-seed, blueberries and of course ice cream and a bit of milk. Cold things seem to be my favorite to eat or drink. I feel like I am drinking all the time, but I am still so dehydrated. I am drinking apple juice and water tonight. I still drink Odwalla juices all day too. I like the super green-apple and carrot best lately.
I was hurting from head to toe today. My son wanted me to got out for a walk, but I was weak and my daughter ended up getting me to do some walking in the pool. I am finally cleared to go in the pool after my port… I had to wait a week. It did perk me up some. My “sleep schedule” is off and I am up at 2:45 AM writing this. I am worried about having chemo again tomorrow and pray I will be able to handle it. Supposedly the first month is hard as your body has to get used to it. ” I am going to get rid of my cancer and do fine with chemo tomorrow, I am going to get rid of my cancer and do fine with chemo tomorrow, I am going to get rid of my cancer and do fine with my chemo tomorrow. On that note, I am off to bed.
I had chmotherapy 4 days ago and I say, “chemotherpy is a bitch!’. My nurse told me it could hit hard like this and it sucks!. Today, every inch of my body hurts from my head to my toes. I am telling myself that I hurt because my good cells are fighting the cancer cells. My body is supposed to get used to this hell in about a month. I can’t wait for my body to get used to the chemotherapy. I am going to get some physical therapy next week. That will be interesting as today I can barely stay up. “I will get this cancer to leave my body, I will get this cancer to leave my body, I will get this cancer to leave my body.”.
Food tastes like metal so it is very challenging to eat today. I was told food is fuel and to get anything I can down. I did have some soup and a milkshake. It still didn’t taste good. That is suppose to improve as well over time.
Well, I am just too beat to write. Eat what you can and keep plugging along!
Okay, this has been the worst day ever! I was not only fatigued, nauseated and had a headache, but, my body has been in severe pain all day. I thought I would never get to this blog today. I am a bit better tonight. I had a hard time eating and I did not eat very healthy as only some foods tasted good. I had a protein vanilla shake, jello, soup, toast and about a cup of pasta with pesto today. I managed to get all my vitamins and minerals in me too. I hope that tomorrow I feel better. I was told to expect my body to feel like it is going through “hell” for the first few treatments. Supposedly out body gets used to the chemotherapy after you have a few treatments. My biggest concern is my blood work being good enough to take my therapy.
I am going to have some physical therapy as my muscles are very weak and my oncologist thinks I need to do more exercise to keep strong. He said that even if you feel like you can’t do anything, you must push yourself to do what you can. I did not do very well with that today. I did do hand therapy with a “sand ball” that you squeeze to strengthen your hands and arms.
One of our friends who had breast cancer a few years ago told me that she was taking one of the chemotherapy drugs I am taking called Taxol. She said her hair started to fall out after the second treatment. I am a bit freaked out about that, so I do want to get a wig. I have relatively long and thick hair so this is going to be a shock. Losing my hair is fine as I want my cancer to leave my body. Our friend said that she was also very constipated with the medication. She said she took stool softeners at each meal. I have taken three in the morning and three at bedtime. The nurse said not to go more than three days without a bowel movement, but I am doing my best not to go longer than two days. I got a lovely card from a longtime friend and had a nice conversation with a friend who offered to visit soon.
I had lost my voice for most of the day. It is a bit better now. It seems to come and go. Well, I am in for the ride of my life. Lets keep our heads on straight and push ahead on the road to recovery and may anyone on chemotherapy remember to just stay positive, laugh, live and take it one day at a time.
Just a quick note for yesterday. It was my second day after chemotherapy and I was so tired all day. I really had a hard time doing anything. I still had a headache and nausea with extreme exhaustion. My nurse at oncology told me this might happen. I wish I could tell you I did something spectacular, but I did not. One day at a time. I think it is important for anyone on chemotherapy treatment to remember that and be strong.
Hi, I made it through a rough night of running to the bathroom. For some reason my chemo had me urinating every hour. I was so exhausted I unfortunately had an accident in bed. Later in the night, I fell asleep on the toilet and fell off the toilet. Thankfully my daughter heard me and helped me. What a night. In the morning I was nauseated and had a headache most of the day. By the late afternoon, the frequent urination got better and so did my nausea. Whew! I was able to put on a swim suit and get wet outside, as it was so hot again. I am not allowed to go in the pool until Wednesday as I just got my port a few days ago, but the water felt great. I relaxed outside for awhile and was able to eat some dinner. My daughter made soft polenta with shiitake mushrooms, button mushrooms and artichoke hearts as well as steamed broccoli and she even had me eat a bit of beef cutlet. I ate about half of my meal, but I was able to keep it down. Then, my daughter and son took me to see the new Spiderman movie. At first I did not want to go, but I felt better tonight and we went. It was really good and I made it until the end without having to got to the bathroom. It is really important to keep living and enjoy life. Besides’ I am healthy and my cancer is going away, I am healthy and my cancer is going away, I am healthy and my cancer is going away”. So, when you feel like you can get outside or out of the house, go for it. Life is a gift and we want to enjoy the gift.
Breathe, relax and have some fun,