Had a nice couple of days and enjoyed the weekend after chemo. It has been so nice not feeling so sick this round. Getting the good news of my CA125 dropping of course helped. As I mentioned, this is a tumor marker to track and see how I am progressing. I have been doing my arm exercises and swimming a bit which has been nice as it has been over 100 the last couple of days. I have been getting rest as well and just taking it easy overall. I have been able to eat with out nausea and that has been very nice. My pain is under control so on the health end I feel very blessed.
I am keeping my chin up on our home. My daughter is going to ask her boss if he can help her somehow. I pray he will help and then she will figure out how to pay him back. If not, I have to remember health first the rest will follow. In a positive light “We will pay our mortgage on time, we will pay our mortgage on time, we will pay our mortgage on time”
I enjoyed the ending ceremony of the Olympics tonight. What a wonderful sight-seeing all the world come together. I wish it could always be like this. This is the first time I have ever seen so much of the Olympics and I loved them.
To all good things for all,
It happened! Almost all my hair fell out today. It was very weird. I have a huge bald spot in the back of my head. I have some thin hair left on top and the sides, so my children cut my hair super short. Time for a wig. I have to be confident that the chemo is truly working. My pain has been little to none for the last week, and that is a good sign per my nurse.
“I am going to get rid of my cancer, I am going to get rid of my cancer, I am going to get rid fo my cancer!”
We had our lemon cream pie. It turned out very creamy like cheese cake and was worth the time to make it.. One of the main ingredients is vanilla greek yogurt. The yogurt made it extra creamy. It also had lemon drop candy crushed in the pie crust which was just shortbread cookies butter and crushed lemon drops. It had just a slight crunch to the crust. My son loves lemon and he really enjoyed it.
We are going to watch a movie my son rented tonight so take care and love each and every day.
Before I talk about my Chemotherapy training today, I need to catch up by talking about getting my port put in yesterday. I am going to need chemotherapy for 6 months, once a week. Since it is going to be often, my Oncologist had me get a port. This is a small device that is placed under the skin and into one of the large central veins that take blood to your heart. My device is a Bard Power Port that was implanted. It is about the size of a quarter. My incision is about an inch and a half. It will make the many injections, chemo treatments and blood draws easier as a needle can be easily put into the septum are a of the port. This means the area to inject the needle to access my vein. I was told it has to be flushed with heparin every 4 weeks to prevent blood clots. I have to take at easy and not do any lifting or much arm movement for a week. I also cannot swim for a week. It has been extremely hot lately so that will be hard for me as we do not have air-conditioning and our home is old and gets very hot.
Let me tell you a bit more. This was an out-patient surgery and I had to fast from mid-night on the night before. I had the procedure done in a hospital. After checking in, I was set in a bed and to take off my clothes and get in a gown. I had to get an IV for administration of sedatives. I was so dehydrated, that it took a few times for the nurses to get a vein. It is no fun being stuck by a needle over and over. Good thing I got a port. It will save me from a lot of anxiety and pain in the future. While I was in bed, the nurse reviewed my history with my son and I. After about 2 hours I had my procedure. When I was finished I was back in recovery and to go home after I was awake and rested for an hour. I was very tired and groggy from the medication which was Verced and Fentanyl. The whole time in the hospital was around 5 hours. I am happy it is done. I have been very sore today and my arms hurt very badly today. I have also been weak which is common after anesthesia medications.
I went to my chemotherapy class with my son and daughter. I was quite long at 2 hours. We all met with an RN who when over an enormous amount of information. We also watched a video to review all we discussed. We were also able to ask as many questions as we wanted which was great. The chemotherapy I have to have usually causes hair loss. My nurse suggested a wig and they even have a place that they recommend. I hope that by the time my hair falls out we can afford a wig. I have health insurance, but all these extra medications and appointments still require additional payments. It frustrates me that we do not have any savings to pay for these things. Therefore, we have to not pay many of our bills and cut way back on everything even more. My children are losing work too. I feel like we already had enough to worry about. They say you have to believe money will come to you. Okay, “Money is coming, Money is coming, Money is coming. ” Of course, My cancer will go away, my cancer will go away, my cancer will go away. ”
One of the biggest issues for me now is I am anemic. My nurse told me they are going to draw a metabolic panel every week to check my white bloods, red blood cells, hemoglobin, CBC and maybe more as needed. I also get chronic bladder infections, so they have to monitor me carefully for infections. What fun…okay its Chemo Friday. It is Friday the 13th and for my family, we say that is a lucky day. So I need to rest for tomorrow. I will talk more about what I learn on and off. One super important note is you have to drink eight to ten glasses of fluids a day to flush out the toxins. They also told me that for two to three days after chemotherapy you need to flush the toilet twice to rid the chemicals. Sounds scary, but I want to be well and I will do what is necessary.
One day at a time,
I had an out-patient procedure today of an insertion of a port into my body. I want to explain the port to you more and will do that tomorrow as I am still tired from the anesthesia tonight. Having two days of back to back procedures has worn me out. I can tell you that the hospital staff was very nice and that made it all a lot easier. At least I have my port in to make it easier for chemotherapy which is starting on Friday. Tomorrow I have a class on what to expect with chemotherapy. So I am going to get some rest. Check in tomorrow and I will describe my procedure and talk about my chemotherapy class.
Keep Strong and Positive
I had my Pet Scan today. I am happy that is done for now. This was a baseline to see exactly where I have cancer before I start treatment. To prepare for the Pet Scan I had to avoid carbohydrates, Caffeine and sugar for 24 hours prior to the test. When I arrived they were running late, so I had to wait about half an hour. They took me in a room with a recliner and inserted an IV in my hand. I was injected with radioactive dye. I then had to sit and relax for an hour while the radioactive dye went through my body. The dye supposedly “lights up” where there is cancer cells. I was resting in the recliner and it ended up being an hour and a half as they were still behind. I was able to leave my underwear and my moo moo I wore without a bra. You can’t have any metal when you have the Pet Scan done. I was assisted on to a table that was connected the scanner. I had to lie with my arms wrapped to my sides for an hour. The technician moved me into the scanner which was like being in a tube. I had to go in and out of it a few times. At first it was fast and then slow. I was nervous, but able to handle it. I had worried I might get claustrophobic as there is not much room in there, but I was okay. They told me that they took 1300 pictures of my body from my skull to my mid-thigh.
The moving table was so hard that when I got up, my back and stomach really hurt and I was extremely weak. I had to rest for another 2o minutes and they gave me orange juice to drink. They told me to drink a lot of water and the radioactive dye would come out in my urine. They told me I may get a headache and feel cranky.
I was so glad to get done. My son took me to eat afterward and I ate at IHOP. I decided I could splurge today and age minnestrone soup, chicken fried steak, mashed potatoes and broccoli. I could only eat half of it, but it was very good as I had not been able to eat today.
When I got home I was so tired I had to rest. In fact, tomorrow I have an outpatient surgery procedure to put a port in for chemotherapy. This is to make it easier for my to have chemotherapy. They will have direct access to this port that goes directly into my vein. I will know more tomorrow.
I was told to rest well tonight so I am going to goodnight and say,”My results will be good, My results will be good, My results will be good. I am going to get my cancer to go away, I am going to get my cancer to go away, I am going to get my cancer to go away.” I was a beautiful day out today. Remember to enjoy nature.
Lots of Love,
I had a frustrating day as I had to eat specific foods yesterday to prepare for my Pet Scan and it go cancelled. Mind you I did not know my Pet Scan was cancelled. My son had to stop his work day and drive me 45 minutes and my Pet scan got cancelled and they did not inform us properly. They supposedly tried to have me come in last minute in the AM, but did not contact the correct number. I would not have been able to do it anyway as we live to far away. So, I had to go out of town for no reason and now have to go in the morning. Not only was it frustrating, but gas is expensive and when you have financial issues every penny counts. I am also tired as I was not able to do my usual juicing today and now I have to wait until tomorrow night to be able to drink my juices. They really seem to make a difference in how I feel. I totally recommend Odwalla carrot juice, super green and their many other drinks. I also was not able to have my protein shakes and they help as well. When you get the drinks with extra protein it keeps your energy up.
I came home exhausted from the heat and feeling week, but still managed to go swimming. Remember, you have to keep exercising to be strong for chemotherapy. On that note, I am going to go to bed as I am still exhausted.
Keep on moving around
Tomorrow starts my chemotherapy preparation week. I am having a Pet Scan which will view my entire body for any signs of cancer. I must tell you I am nervous about it. This is considered my baseline, meaning it will show were the cancer is and will be followed up routinely to monitor the effectiveness of my treatment. I will need to have an Intravenous injection for some type of dye for my Pet Scan. I am allergic to iodine dye, but they said it will be one that does not have iodine in it. You have to have this with your Pet Scan for the “cancer areas” to show up. I have to eat only protein, veggies and dairy today so I do not interfere with the test. I had a lot of carrot juice, a hamburger for my anemia and fresh beets so far today. We are going to eat rare meat and lots of veggies, water and carrot juice today. I want to tell you that I am taking more of the tumeric and it really seems to help me not have as much inflammation in my stomach. I even read that tumeric can cure bowel cancer. It is used in curries. Arnica is also great for inflammation. You can buy it as a cream to use like aspercream or in pill form. That helps too. It is really warm today. I am going to push myself to get outside and exercise because my Oncologisttold me I need to exercise as much as possible to get strong for my chemotherapy. I know I can do anything I put my mind to doing. All our dreams can come true, we just need to truly believe in them. This means never doubting ourselves. I know I am human and gets doubts, but I will also do all I can to stop my doubts and believe that “I will be healthy and free of cancer, I will be healthy and free of cancer, I will be healthy and free of cancer”. Give yourself positive affirmations every day and say them repeatedly and you will believe, you will be well. God Bless you, Gia